WILLpower (Vandy 6/30 - 7/1)

Saturday:
Another restless night. JT and Will actually ended up sleeping together in the recliner most of the night. I hate that he can't get comfortable!

JT brought Will a pancake for breakfast, and he did pretty good eating it. He had some grilled cheese for lunch and a turkey sandwich for dinner. Eating was hit or miss, but we tried anything we could. MAO came today and Will ate his first ice cream cone - he loved it!

Will LOVED the ice cream cone!

Will really got into playing with his toys and getting back to his usual fun self.
The resident came in and took out Will's drain tube. I was up by his head and didn't really see it, but JT for some reason watched and I don't know how he didn't faint!
Saturday evening Dr. Thomas showed up and was excited to see Will sitting on the couch playing. We talked for a long time about how crazy this past week and half has been. He told us that we were good parents and should always continue to follow our instincts about Will, because no one will ever know him like we do. What if we had given up and just taken him home Sunday? What kind of condition would Will be in now? Scary to even think about! Dr. Thomas thanked us for being so patient and letting them find the problem and fix him. We thanked him for giving us our baby back.
And then the words we have been longing to hear...discharge in the morning! YAY!!!!!!
Will was CRAZY Saturday night! He didn't want to go to bed. He just wanted to laugh and play. I can't blame him, he has been so lethargic for past 2 weeks.

Sunday:
The resident came in around 7:00 for one last check on Will and then she told us she was getting his paperwork ready. Yay! JT started packing like a mad man. I don't know why the hurry, it takes hours to get discharge stuff together. He took a bunch of stuff to the car and I stayed in the room with Will. Will apparently  knew that we were going home and chose to scream at the top of his lungs in his room while pointing at the door. If I walked outside with him into the hall, he calmed down. The nurse came in and said everything was done. He took out Will's last IV and JT walked back in right after.
Goodbye Vandy! Will was wide-eyed the entire walk thru the hospital. When we got to the car he looked shocked. We are going home!

JT and I said that we could get through this because we had WILLpower! Our little boy is brave and tough and he can get through anything!

Our hospital board in the room. JT drew a pic of our family. Then Uncle Jon drew a pic of himself as a cartoon. And "WILLpower" is the most important thing!